Monday, December 15, 2008

Kaden James - Warrior Angel

On August 18, 2008 we were all blessed with Kaden James and followed his amazing journey here on earth. Jamie, this precious one's Mommy, called him her Warrior. He is indeed a warrior of CDH. Jamie always held on to hope - and we kept encouraging her to hold on to that because sometimes that and prayers get these amazing beings through. Kaden liked the idea of wings over feet and on September 16, 2008 he flew to heaven after being in the comfort of his parents arms.
His parents are amazing people and hope to have foster children in their home. We don't pity these families and babies - we are in awe of their amazing strength.
I imagine that Kaden is in the company of the Arc Angel Michael - who is the leader of the Warriors of Heaven.

Saturday, December 6, 2008

Duke Medical Center - Carter

John Carter is still in the NICU at Duke Children's Hospital & Health Center as of this posting but we have been amazed at Carter's progress and Duke's doctors, nurses and their entire staff's patience. With these babies who have congenital diaphragmatic hernia, it is a delicate dance they do to get them to the point of going home. Carter is now on that fast track, feeds are an issue as with many NICU babies.

The ability, skill and instincts of the Duke staff have been absolutely amazing and it has been a thrill to watch them work with Carter. Of course his parents, Kellie and Brad and canine sister Lucy have been so dedicated to Sir Carter too! They have been staying at Parker's House which is supported by the Parker Reese Foundation another wonderful organization for families affected by congenital diaphragmatic hernia.
Kellie and Brad - thank you for letting us feature your amazing boy!
Keeping you all and the Duke staff in our thoughts and prayers!

Sunday, May 18, 2008

Feature a Child - For Awareness!

Here we will feature a child affected by the birth defect Congenital Diaphragmatic Hernia. We will always have links to their sites here so that those searching for information can find real families who have been affected by this birth defect.

Many of those affected have actively participated in Congenital Diaphragmatic Hernia Awareness TM Day - by writing letters to their Governors, Mayors and their local newspapers announcing this campaign.

Breath of Hope, Inc. implemented this campaign and the members, their families, friends and the public made this a very possible reality - 31 States in the United States issued Proclamations for March 31, 2008. Our hope is to have all 50 States for 2009.

With your help this will be possible! Please email for more information on how you can help!